EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain

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dc.contributor.author Chaparro, María
dc.contributor.author Barreiro-de Acosta, Manuel
dc.contributor.author Benítez, José Manuel
dc.contributor.author Cabriada, José Luis
dc.contributor.author Casanova, María José
dc.contributor.author Ceballos, Daniel
dc.contributor.author Esteve, María
dc.contributor.author Fernández, Hipólito
dc.contributor.author Ginard, Daniel
dc.contributor.author Gomollón, Fernando
dc.contributor.author Lorente, Rufo
dc.contributor.author Nos, Pilar
dc.contributor.author Riestra, Sabino
dc.contributor.author Rivero, Montserrat
dc.contributor.author Robledo, Pilar
dc.contributor.author Rodríguez, Cristina
dc.contributor.author Sicilia, Beatriz
dc.contributor.author Torrella, Emilio
dc.contributor.author Garre, Ana
dc.contributor.author García-Esquinas, Esther
dc.contributor.author Rodríguez-Artalejo, Fernando
dc.contributor.author Gisbert, Javier P.
dc.contributor.other UAM. Departamento de Medicina es_ES
dc.contributor.other UAM. Departamento de Medicina Preventiva y Salud Pública y Microbiología es_ES
dc.contributor.other Instituto de Investigación Sanitaria Hospital Universitario de La Princesa (IIS-IP) es_ES
dc.date.accessioned 2019-10-30T16:51:42Z
dc.date.available 2019-10-30T16:51:42Z
dc.date.issued 2019-05-01
dc.identifier.citation Therapeutic Advances in Gastroenterology 12 (2019): 1-11 en_US
dc.identifier.issn 1756-283X (print) es_ES
dc.identifier.issn 1756-2848 (online) es_ES
dc.identifier.uri http://hdl.handle.net/10486/689066
dc.description.abstract Background: Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes. Methods: This multicenter, population-based incidence cohort study included patients aged >18 years with IBD (Crohn’s disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded. Results: The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up. Conclusions: The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD. en_US
dc.description.sponsorship This research has been funded by grants from the Instituto de Salud Carlos III (FIS grant PI16/01296 and PFI17/00143), a grant from GETECCU and a grant from MSD. en_US
dc.format.extent 11 pag. es_ES
dc.format.mimetype application/pdf en
dc.language.iso eng en
dc.publisher SAGE Publications (UK and US) es_ES
dc.relation.ispartof Therapeutic Advances in Gastroenterology en_US
dc.rights © The Author(s), 2019 en_US
dc.subject.other Crohn’s disease en_US
dc.subject.other Epidemiology en_US
dc.subject.other Incidence en_US
dc.subject.other Inflammatory bowel disease en_US
dc.subject.other Ulcerative colitis en_US
dc.title EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain en_US
dc.type article en
dc.subject.eciencia Medicina es_ES
dc.relation.publisherversion https://doi.org/10.1177/1756284819847034 es_ES
dc.identifier.doi 10.1177/1756284819847034 es_ES
dc.identifier.publicationfirstpage 1 es_ES
dc.identifier.publicationissue 12 es_ES
dc.identifier.publicationlastpage 11 es_ES
dc.relation.projectID Gobierno de España. PI16/01296 es_ES
dc.relation.projectID Gobierno de España. PFI17/00143 es_ES
dc.type.version info:eu-repo/semantics/submittedVersion en
dc.rights.cc Reconocimiento – NoComercial es_ES
dc.rights.accessRights openAccess en
dc.authorUAM Chaparro Sánchez, María (274035)
dc.authorUAM Rodríguez Artalejo, Fernando (259343)

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