EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain
Author
Chaparro Sánchez, María; Barreiro-de Acosta, Manuel; Benítez, José Manuel; Cabriada, José Luis; Casanova, María José; Ceballos, Daniel; Esteve, María; Fernández, Hipólito; Ginard, Daniel; Gomollón, Fernando; Lorente, Rufo; Nos, Pilar; Riestra, Sabino; Rivero, Montserrat; Robledo, Pilar; Rodríguez, Cristina; Sicilia, Beatriz; Torrella, Emilio; Garre, Ana; García García-Esquinas, Esther; Rodríguez Artalejo, Fernando; Pérez Gisbert, Francisco JavierEntity
UAM. Departamento de Medicina; UAM. Departamento de Medicina Preventiva y Salud Pública y Microbiología; Instituto de Investigación del Hospital de La Princesa (IP)Publisher
SAGE Publications (UK and US)Date
2019-05-01Citation
10.1177/1756284819847034
Therapeutic Advances in Gastroenterology 12 (2019): 1-11
ISSN
1756-283X (print); 1756-2848 (online)DOI
10.1177/1756284819847034Funded by
This research has been funded by grants from the Instituto de Salud Carlos III (FIS grant PI16/01296 and PFI17/00143), a grant from GETECCU and a grant from MSD.Project
Gobierno de España. PI16/01296; Gobierno de España. PFI17/00143Editor's Version
https://doi.org/10.1177/1756284819847034Subjects
Crohn’s disease; Epidemiology; Incidence; Inflammatory bowel disease; Ulcerative colitis; MedicinaRights
© The Author(s), 2019Abstract
Background: Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes. Methods: This multicenter, population-based incidence cohort study included patients aged >18 years with IBD (Crohn’s disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded. Results: The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up. Conclusions: The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD.
Files in this item
Google Scholar:Chaparro Sánchez, María
-
Barreiro-de Acosta, Manuel
-
Benítez, José Manuel
-
Cabriada, José Luis
-
Casanova, María José
-
Ceballos, Daniel
-
Esteve, María
-
Fernández, Hipólito
-
Ginard, Daniel
-
Gomollón, Fernando
-
Lorente, Rufo
-
Nos, Pilar
-
Riestra, Sabino
-
Rivero, Montserrat
-
Robledo, Pilar
-
Rodríguez, Cristina
-
Sicilia, Beatriz
-
Torrella, Emilio
-
Garre, Ana
-
García García-Esquinas, Esther
-
Rodríguez Artalejo, Fernando
-
Pérez Gisbert, Francisco Javier
This item appears in the following Collection(s)
Related items
Showing items related by title, author, creator and subject.